Monday, May 30, 2011

(Blog) Carnival Ride

Well, after hosting the Disability Blog Carnival back in February, I'm back for another round.  I'm hosting the June Disability Blog Carnival and the theme, I've decided, is going to be community.  How does a disability community, or the lack of, affect you?  How do you define a disability community?  I'm excited to read all your posts!  I'm a bit late in getting the announcement up this time around, so I'll give you plenty of time to write all your posts - I know how writer's block can get in the way.  Try and have your posts to me by the 25th, but if you submit a late post, I'll add it in later.  Comment on this post (I've disabled word verification for those of you who may have trouble interpreting it) or email me with your post at  Or, if you have me on Facebook, you can also submit it to me that way.  Any way you can get it to me is fine.  Happy blogging everyone!

"God put us here on this carnival ride
We close our eyes
Never knowing where it will take us next
Babies are born and at the same time, someone's taking their last breath
It's the wheel of the world
It's the wheel of the world turning around."
-Wheel of the World by Carrie Underwood 

Friday, May 20, 2011

Self-Care is a B*tch

I never thought too much about self care before I went to college.  Sure, some aspects of self care were more difficult for me, but I had been completely independent in all my self-care activities since my mid teens.  Surely self care wouldn't be difficult for me in college, after all, I took care of myself every day.  I didn't need a personal assistant like some of my friends, I could do everything on my own.  Taking care of myself in college would be a breeze; in fact, I barely thought about it before I left.

Oh how wrong I was.  Sure, at home, I did everything major myself - showering, dressing, etc., sometimes with the help of some adaptive equipment, like a shower chair or my awesome three headed toothbrush.  But I completely didn't take into account the little things, or how the college environment differs from the home environment.

At home, the farthest I had to carry a plate was about five feet to the kitchen, and it was usually an empty plate at the end of a meal, and not a full plate at the beginning of a meal.  In college, I had to navigate a crowded dining hall while carrying a full plate of food and usually a drink.  If the dining hall was particularly packed, it could take me up to fifteen, twenty minutes to find a seat, and that's after my wrists started screaming in pain.  The back dining room was often open for students on crowded days, but I had to navigate a long hallway while carrying my food in order to get there.  That's not to mention that's after I usually stood in a long line for food, while my back, knees, feet, and ankles all ached in tandem.

.....And people wonder why I like to take my scooter to the dining hall a lot.

It's the little things that really get me.  My first semester, I got sick.  Nothing serious, just a bad cold.  I went to the health center and they gave me a bottle of cough syrup.  Stupid me didn't think to check if it was a child proof cap or not til I got back to my room.  I spent over a half hour trying to open the damn cap before I had to go somewhere.  I spent the next two hours hacking my lungs out during a play performance because I couldn't open the cough syrup!  I eventually got it open only for a majority of it to spray all over.  It literally looked like a massacre had occurred in my bathroom.

I didn't think taking care of myself would be hard in college.  It turns out it kind of was. I didn't realize how accustomed I was to having my parents do things for me. I have now finished my freshman year and have learned a lot about taking care of myself. I am definitely a more independent person now. I look forward to carrying that knowledge into the rest of my college career as well as the rest of my life.

Please note that this post is for the May disability blog carnival.  Happy blogging everyone!

Wednesday, May 11, 2011

New bloggy things!

Hey all,

I would like to direct your attention to a brand new blog project cooked up by me and my friend Kyle.  No worries, I'll still be posting on Butterfly Dreams, but I'll ALSO be posting over there on Palsy Snark.  It's similar to this blog, except each post deals with a specific issue and has both of us awesome palsy people commenting on it.  Sometimes we agree, sometimes we don't, but it's always interesting.  So go over to and follow us!  We have a lot to say.

Also, I'm going to insert a shameless plug for a friend here.  My friend Dani has been the best friend I've made in college, and she has a collection of diagnoses that even took ME aback for a bit.  She recently started a blog at my urging and so far she's doing great!  So go on over to Defying Disabilities and check her out!  Follow her!  She has a lot of opinions, some of which clash with mine, but hey, debate makes life interesting!

Watch this space for the theme for the June Disability Blog Carnival, hosted by yours truly!